Met with the surgeon today.

Today is a day I would love to stop time and look at Evan eyes all day long. It was another long day at the Drs. Evan started getting sick on Sunday; he had a runny nose and a slight fever. With the flu going around, the anesthesiologist nurse practitioner was worried Evan might have it, which would mean we would have to postpone the surgery. After doing his pre-op at the hospital, then visiting with the surgeon, we took Evan to his pediatrician. Turns out he has an ear infection. He was put on an antibiotic and we can still continue with the surgery tomorrow at 3:45. The nurse did mention that because of a lot of people coming down with the flu, there have been a lot of cancelations which means there is a possibility of Evan’s surgery happening earlier. We hope that happens, because 6 month olds don’t quite understand the need to have to fast before a surgery. Evan is not going to be happy this afternoon. He can have pedialite until 11:45 am, after that, nothing. It has been now a month since this all started. Surgery couldn’t be soon enough.

Before talking to the surgeon today, I didn’t realize how big the mass was, it’s the size of a cherry. Although the surgeon mentioned that that is small, we thought it seems so big for such a small child. Our surgeon, was not able to look at the actual CT images before we talked to him, he only had a report. We were just happy he was able to squeeze us in, just coming back from being out of town. The surgery should last about 2 hours or so and we hope to get the biopsy results within 24 hours. The location of the mass is not easily accessible. The surgeon mentioned that he may have to pop out or cut Evan’s collar bone to get to it. The incision will be a couple inches long, but the scar should become less visible with time. The Dr did warn us that Evan will almost certainly have a permanent Horner’s syndrome because most likely, the mass is intertwined with the nerve, so removing the mass will mean part of the nerve will also come out. This won’t affect Evan’s vision and there are things that can be done later to make the droop less noticeable, but with all the other possible, unthinkable outcomes of all of this, if the only long term problem he has is Horner’s, we’ll be happy.
Evan continues to Huff and puff since 2/11. This might be related to the mass. The surgeon didn’t think the mass was pushing on any of his airway, but he did explain that there is another nerve nearby that travels to the diaphragm that may be affected by the mass. They also plan on removing any enlarged lymph nodes as well as a random sample to test.
Tomorrow is surgery, Evan was so tired tonight. He is sleeping in our bed with Mike right now. I don’t quite understand while a little 6 month old has to go through this. He just turned 6 months on Sunday. I had a hard enough time sending him just to do a CT scan. It is hard to think what will actually happen in the next 48 hours. The only thing I just pray for the best for our sweet baby boy.

Thank you all for keeping little Evan in your thoughts and prayers.