Sunday, February 15, 2009

Here are some more photos taken on 2/16/09
https://www.searsphotos.com/?shareid=S206716823l2869YPHNXD




Our little Bugga Boo, little man, one sock man, Evan is now 17 months old. For some reason, during the day, he normally pulls off one sock and at the end of the day he continues to wear just one sock. Sometimes it’s the right foot, other times it’s the left. He also doesn’t like to sleep with blankets. If he’s asleep, but not in a deep sleep and you try to cover him up, he’ll kick off the blankets. He had climbed out of his crib about two weeks ago, breaking Emma's record. At Grandma’s Chicago house, I was playing with Emma’s new cash register and talking into the microphone and I just happen to say to Evan I love you and my heart just jump for joy when I heard him say it back. That same day he also took us by surprise and sang words to Twinkle Twinkle Little Star. He has hummed to songs before, but this was the first time he actually sang words to a song. When we came back from our Christmas in Chicago trip, Evan woke up one morning and did not see Daddy, and he said I want Daddy. I want Daddy. My heart melted again. I was so happy Mike was in the other room at the time. One of his new words is TV, the letter Y which I call the YMCA, car, turkey, juice box, and up-ee. He likes to put toys in and out of buckets, and has just started to build with logos. He makes the car sound zoooooom. Evan doesn’t mind if Emma open’s his string cheese or on rare occasions brushes his teeth. However, he doesn’t want her dressing him (I think he knows it’s only a matter of time before she tries to put her princes’ dresses on him). He does like to join her standing on a chair, or eating some of Emma’s food she could not finish. He really likes doing things she is doing or mimicking noises she is making and sometimes they get very loud. Milk is his favorite food; I have to buy two gallons a week just for Evan, although the DR just said I needed to cut back. He now climbs in his booster chair when he’s hungry and waits for us to bring him food. I can’t wait to hear more what he has to say.



On any other day when I approach the hospital I’m fine passing it. However, for some reason the site of it of it on 1/8/09 the day of his 5th CT Scan made me teary eyed. I told myself, I just needed to stop and I was fine for the rest of the visit. The hospital visit went smoothly. They drew the blood for the NSE (Neuron-Specific Enolase) his tumor marker and the CBC (Complete Blood Count) at the hospital. Evan did not want to wake up from sedation, sometimes I just wish we could let him sleep until he woke up on his own. He wasn’t very hungry after he woke up this time. He has to fast every morning of any of his CT scans. His DR visit was the very next day to go over his Neck CT Scan results and CBC. The CT scans and CBC came out normal!!



We had to take the NSE test twice, his blood always clots for this test. His blood counts actually increased slightly this time from 12.5 to 13.8, normal range (3.7-8.9). I really did not expect this. I was hoping his counts would finally be in normal range. Since I know counts can fluctuate and the NSE test is not a proven tumor marker and DRs don’t get concerned unless it’s in the 100’s, I won’t worry too much at this point. The Dr said since we were a little short of a year since surgery 2/26/08 he would have to take another CT in 3 mos which will be scheduled in April 2009. The next CT scan should be taken after 6mos have past.

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